Adrian Goldberg reveals a new report which describes the commissioning of palliative care for children with life-shortening conditions as 'patchy and inconsistent'. The report highlights the lack of specialist services at weekends and overnight when many parents need it most. We hear the moving stories of parents struggling to get the right support for the weeks, months or in many cases years that they are caring for their children - and the desperate financial situation they can be thrown into when their child dies.