<div>ये पॉडकास्ट भारत सरकार,आर्गेनाईजेशन फॉर रेयर डीज़ीइस इंडिया और विश्व स्वास्थय संगठन दिशा-निर्देश पर आधारित है। यह उनके लिए लाभयदायक है जो आश्रित व्यक्तियों की देख भाल कर रहे हैं या दुर्लभ रोगों से झूंझ रहे हैं ।<br><br>पॉडकास्ट में दिया गया ईमेल आई.डी. है: <a href="mailto:contactus@ordiindia.in">contactus@ordiindia.in</a> ।  <br>वेबसाइट है <a href="http://www.mygov.in/">www.mygov.in</a> ।</div><div><br></div>

1: The impact of COVID-19 & lockdown on people with rare diseases

There are more than 7,000 documented rare conditions in the world. While there is no known cure for some conditions, where there is a cure (or maintenance through medicines is possible), the cost of medication is exponentially high to bear. This podcast will focus on the status of rare conditions in India, which has been talked about very little in Indian society. It will be a one-of-its-kind attempt in India to document the gamut of challenges and achievements of people with rare conditions and will open a constructive dialogue on what can be done. This is important because an estimated 1 in 20 Indians are affected by a rare disease. The series will bring out the human face behind rare conditions – the patients, the families, caregivers, doctors, activists and geneticists working to improve life for people with rare conditions.